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Partners in Health allies with former allies and adversaries to secure a $45 million grant from the Gates Foundation for its anti-TB program in Peru. Farmer must convince existing donors that their contributions are still necessary, and PIH sells its corporate offices to pay for AIDS antiretrovirals for 250 patients in Haiti. As PIH expands from 20 employees to 50, it adopts industry labor standards while maintaining 5% administrative costs and preventing newcomers from imitating Farmer’s schedule.
PIH also takes on the Soros Foundation’s pilot program in Tomsk, Siberia, after Goldfarb helps a KGB agent escape from Russia. Farmer only wants to take on clinical duties and becomes furious when Kim asks him to go to Russia to cover meetings for him. Kim brings up the fact that Farmer never meets him at the airport, and Farmer misunderstands his grievance. Kim ends up going to Russia with Kidder, where the PIH manager uses karaoke to win over generals and “singing gulagmeisters.” Farmer arrives the next day for treatments and a banquet, and he tells Kidder about how PIH is spending $150,000 on drugs to treat 35 patients now instead of waiting for drug prices to fall.
Zanmi Lasante is now a model for treating diseases in poor nations, with Hiatt reverting his earlier views upon visiting it. The Global Fund, representing government and foundation interests, awards the hospital $14 million to treat AIDS patients in a project that includes in-person visits in rough terrain, education programs, water supply treatment, infant formulas, and the PIH requirement to treat diseases that don’t match the program’s criteria. However, Zanmi Lasante also faces a four-fold increase in patients after the United States curtails aid to Aristide’s government. Farmer is upset that others consider his struggling operation as the best model possible. He considers ending his globetrotting schedule to focus on cases exclusively in Boston or Cange, but Kidder feels that Farmer will continue his journeys.
While Zanmi Lasante now has excellent facilities, it still depends on the Brigham for advanced treatments. On one occasion, a mother brings her roughly 11-year-old son, John, to Cange for suspected tuberculosis in the lymph nodes. With Farmer away on various missions, treatment falls on Brigham doctor Serena Koenig. After a tissue sample that requires a surgeon in Mirebalais and testing in Boston, Farmer and Koenig determine that the boy has nasopharyngeal carcinoma, a rare childhood cancer with an above-average cure rate. However, John would need to travel to Boston, and obtaining pro bono treatment for the $100,000 procedure takes a month, after which Serena still must get a passport for someone with no birthdate and find a traveling companion.
Kidder goes with Serena to Cange and finds John in a skeletal state with bulbs growing out of his neck. He requires a breathing tube and regular removal of throat secretions. Koenig suggests an immediate medevac flight but knows that a $18,500 trip will harm PIH’s reputation if John dies mid-flight. Farmer worries about the precedent of sending some patients to Boston and not others but agrees to the trip. Koenig hires a private ambulance that endures hours of breakdowns, flooding, and the installation of the suction device before taking John to Port-au-Prince.
During the trip to Massachusetts General Hospital, Serena becomes frustrated with a customs agent who mocks Haiti and an intern who implies that Zanmi Lasante didn’t feed John enough. Unfortunately, the doctors determine that the cancer has spread too far to cure it. Serena and other PIH staff feel that the costs were worth it as “A, he’s a human being” who was potentially treatable and didn’t deserve to die in horrible conditions (277). The team gives him palliative care in a comfortable room until his death several weeks later, and Farmer both flies John’s mother over and gives her a job at Zanmi Lasante. Serena’s commitment to John leads Massachusetts General Hospital to build a partnership with PIH.
Two months later, Kidder meets with Farmer and Ti Jean, a young handyman and witness to Cange’s transformation over the years. As Farmer’s informant on local customs, Ti Jean explains how people shapeshift into animals due to trickery or punishment, and he tells Farmer, “Your nest is Haiti” (282).
Kidder travels with Farmer and a team to the town of Casse to visit the family of a boy with similar symptoms to John whom Farmer treats for scrofula. Kidder struggles to keep up with the group but trusts Farmer. Farmer helps diagnose Kidder’s heartburn and dehydration issues even while considering how to get an older couple Canadian crutches. The author considers how Farmer dedicates his life to a form of triage that prioritizes the sickest over those with the highest chance of survival. When Kidder brings up concerns about the cost of John’s treatment, the doctor insists that the patient was still considered treatable at that point and that standing up for every patient is core to his philosophy. Farmer notes that it’s difficult to convince staff members to “fight the long defeat” that does the best for patients even if it isn’t pragmatic (288). This is also a world where airliners and doctors make so many times the cost of treatments that it’s wrong to exclude them from culpability.
The group visits the boy’s family—10 people in a small hut—and devises a plan to diagnose the family while providing concrete floors, nutrition plans, and schooling. Some feel that Farmer focuses too much on individual patients or that he is the sole reason for PIH’s success, but Farmer believes that maintaining a personal link to patients is critical and that “the idea that some lives matter less is the root of all that’s wrong with the world” (294). As the group returns home, Farmer and Ti Jean talk about how most Voodoo ceremonies are about healing. Thinking back to his first trip to Haiti, Kidder wonders whether just that fact alone would change people’s attitudes about the country.
The final part examines the future of Partners in Health. On a structural level, PIH moves closer to Jim Yong Kim’s ideal of an international leader in healthcare by scoring a multimillion-dollar Gates Foundation grant. While procuring a major award can be game changing, this situation also means less operating freedom as PIH must follow the Gates Foundation’s guidelines. Large grants often only fund specific projects, so Farmer needs to convince its smaller donors not to cut their funding. Both PIH and Farmer himself acknowledge that nobody can emulate the doctor’s all-encompassing dedication, but the administrative growth means implementing industry-standard practices for overtime and other benefits.
Chapter 25 is a case study that show the treatment gaps in the oasis of Zanmi Lasante and its self-sufficiency without Farmer’s guidance. The Cange hospital is unable to make a cancer diagnosis that would only take hours to complete in Boston, and the delays in diagnosis and travel arrangements likely allow the cancer to reach an untreatable stage. Koenig faces multiple logistical obstacles just to get John to the airport: A free ambulatory service cannot provide a ride because its vehicle is in the shop, the old private ambulance needs retrofitting to get the suction device to work, and storms flood the roadways. Even Farmer worries about the price of the medical flight and the example it sets.
John’s case creates ethical questions. PIH follows the medical ideal: Treat patients until the doctor exhausts every option, regardless of cost. John dying while receiving pain-reducing treatments in a pleasant room is better than dying in Cange. However, John is already severely ill by the time of the flight, and the $18,500 for the trip could have gone to future patients who are treatable; as a result, the case could convince some donors that PIH is fiscally irresponsible. Likewise, PIH pays for drugs to treat patients today even if it expects prices to drop. Kidder questions whether the ordeal is really to show off PIH’s “capacity for heroics” but concludes that he would have wanted the same treatment if it was his child (279).
Still, Kidder asks Farmer about his thoughts, and Farmer’s response goes to the heart of his worldview. Even with his misgivings, Farmer would still have approved of the medevac flight if he were in Serena’s place and there was still a chance to save a child. Blaming PIH for spending too much money ignores that the medevac company could provide the ride for free with minimal financial burden just as Massachusetts General Hospital has. Most of all, allocating resources for theoretical patients in front of the ones who need expensive treatments violates his O for the P, or “preferential option for the poor,” (174), philosophy. Judging some patients as more deserving of care than others is not pragmatism; it justifies inequality.
Farmer maintains his ideals because he is a physician at heart. Making personal visits by foot to villages miles away is not an efficient use of time, but doing so allows him to personally understand each patient’s problem and not only prescribe accurate treatments, but also address the social conditions that enable disease. Those who criticize Farmer’s practices change their minds upon seeing his results. Despite his misgivings, Kidder feels that he can trust Farmer, and learning that most Voodoo ceremonies are for healing purposes represents a paradigm shift in Kidder’s mindset about the country.
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By Tracy Kidder